Hi my name's nikki, We have a nearly 4 year old son called kai who had an accident last year which left him brain damaged, he has a tracheostomy, jejunesotomy and a gastrostomy, he can't move, walk, talk, eat, but we still see smiles and he can hear and see which were grateful for, all the help weve received since his accident has been over whelming and you certainly find out who your true friends are!
we also have a 3 month old called cody who is also filling our calender with his own appointments with the health visitor and injections!!! i think last month our calender was so full we only had weekends free as no health professional works weekends <alright for some!>
were going to Brainwave in june for a 2 day assessment and were a bit apprehensive about going, we know not to expect miracles but its just the not knowing what to expect, we have a family co-ordinator arriving on the 26th to help explain and go through everything with us, i just wish we had found out about brainwave sooner, believe it or not we found out about it through the man that sorts our mortgage out! He had taken his son to brainwave and got some amazing results through hard work and determination but is now an ambassedor for the company. So for once were pleased we spoke to him!
Its been a huge struggle the last year not just for me or my partner but for all the family but kai's determination and strength has pulled us all through, from being told by doctors that he wouldnt survive the weekend and bringing him home 4 months later on his 3rd birthday meant so much to all of us, that if kai can get through it then so will we! Everytime he smiles it brings tears to my eyes and i want to start crying with joy as i'll always be grateful to everyone who helped give kai back to us.
well i daren't babble anymore.. thats us and this website is great, just makes you feel that little bit better that were not alone and that we can moan about things that people will understand!
thanks xx
