[sally48]

Hello everyone im new here and i was wondering if anyone had a Microcephalic LO
My LO is ten yrs old with Microcephally,CP, no sight or speach and no mobility but a happy little girl when she is well
It would be nice to talk to people who understand the world we live in

Sally48 x

[johnvb]

Hi Sally48

Good to hear from you and welcome to the forum. Well we are in different boats i suppose but our daughter Elise has got a syndrome which is a deletion of a bit of DNA on chromosome 10. There are lots of little "effects" of this one of which microcephaly. It's a lonely place sometimes as we've only just found out about this syndrome and it seems you could fit the entire population of people with it into our house (which is not big!). Plus she is adopted so that adds another set of things to the mix - there certainly aren't many like Elise around, bless her!
Our son Michael is undiagnosed but has his own special mix of "things" to worry about - mild autism and a kidney condition amongst them. Its taken a few years to come to terms with it all really but I think we are generally do pretty well now, even if it is a bit chaotic!

take care and keep in touch

John

[Speeds]

Hello Sally and welcome

Nice to meet you hear.

Am just off on my hols but will be back soon and would love to chat.

I have a little boy (well nearly 9 now) with Prader Willi Syndrome.

Bye for now